Notice Board

Do you want to share an idea or information which you think may help others with, or working with, people with cerebral palsy?

Please send your notice to Udaya Shakya sayhi_udaya@hotmail.com

CAN YOU HELP US PLEASE?
Email from Graham Condie BA, MRes, Research Officer,Cerebral Palsy International Sports and Recreation Association (CPISRA)


Dear Sir / Madam,

As the research officer for CPISRA (Cerebral Palsy International Sports and Recreation Association), I am emailing you today requesting some assistance from you regarding work that CPISRA is doing on sports and recreation camps for individuals with Cerebral Palsy or other associated neurological conditions. A part of this work is research that we are doing looking into the demand for sports training camps and recreational participation camps for individuals with Cerebral Palsy or other neurological conditions. The research is also looking at individuals’ participation in sports and recreation. Any data from this questionnaire research will be used to help CPISRA to increase the number of opportunities available for people with Cerebral Palsy and similar conditions.

The questionnaire research is aimed at individuals who have Cerebral Palsy or other associated neurological conditions, their parents / guardians / carers as well as professionals (such as teachers, support workers and therapists) who work with individuals with Cerebral Palsy or other associated conditions. Each have their own separate questionnaire.

  • Questionnaire for individuals with Cerebral Palsy or other associated neurological conditions - Link
  • Questionnaire for parents / guardians / carers - Link
  • Questionnaire for professionals who work with individuals with Cerebral Palsy or other associated conditions - Link

As a result, I wanted to ask if can please share these questionnaires with your members, staff, students or residents so that CPISRA can get the maximum amount of people getting involved and filling out these questionnaires. The questionnaires will be available until Wednesday 15th November.

I hope that you can help us at CPISRA with this research. If you or any participants have any inquiries, please feel free to email me at graham.condie@cpisra.org.
Thank you in advance,

Graham
Graham Condie BA, MRes
Research Officer

Cerebral Palsy International Sports and Recreation Association (CPISRA)
Opportunity, Development and Participation
www.cpisra.org

Here is the first Notice from New Zealand!

Email to ICPS from Alexander Wolf, Association of Palliative and Hospice Care. Ukraine.

Email to ICPS,

In October 2017, the scientific peer-reviewed journal Clinical social work and health intervention which is indexed in ESCI/WoS database, web page of journal is http://www.clinicalsocialwork.eu/ , shall prepare the special issue 4/2017: Social and Health Palliative Care, dedicated to the World Hospice and Palliative care day.

Articles about different social, medical, psychological, legal, administrative and other aspects of palliative and hospice care are accepted. General requirements for articles are here: http://www.clinicalsocialwork.eu/?page_id=7

Please note, that as scientific papers in our Special Issue shall be published for free, there shall be the strong competition basis for accepted materials.

Please send your articles to the e-mail info@palliativ.kiev.ua before 01 September 2017 for the peer-review process.

Please confirm if you could contribute and if possible send this e-mail to other interested persons.

Yours - Alexander Wolf, Association of palliative and hospice care, Issue Garant, www.palliativ.kiev.ua

 

A dream career with love - Shahedeh Dehghani

After working in the corporate world for four years, I decided to quit and pursue my dream. My dream is to work in a Cerebral Palsy Society as I was born with Spastic Hemiplegia Cerebral Palsy. The condition has not stopped me in my life endeavours, instead, it has pushed me beyond my limits. I am a brown belt in Kung Fu, I have been a motivational speaker in numerous events, I work with a local charity school to raise funds for other disabled children, I am actively involved in generating new funding ideas for the school, I introduce other organizations to the school for CSR involvement, and I am a successful and hard working professional with working experience in Canada and UAE. At this stage of my life, I will do what it takes to be involved in a Cerebral Palsy organization any where in the world. I can bring knowledge and real life experience to your team. To live with this condition and overcome daily life is a challenge. I would love to become a mentor for people who live with cerebral palsy, and assist in bridging the gap to increase the general public's understanding of cerebral palsy. I would highly appreciate your support to make my dream come a reality.

Please contact me at shahedeh.dehghani@gmail.com or 00 97150 204 0077. I will fly to your country for a personal meeting if that is what it takes!

What is a Buddy Scheme?

It is simple. It pairs up a school child with a fellow student of a similar age who has cerebral palsy. Together they learn about each other's likes and dislikes, they play together, infact there is no end to the possibilities of their inter-action!

Pegasus Wings of Friendship is a New Zealand charity that supports children with cerebral palsy by addressing both their physical and emotional needs. Their motivated student body all over New Zealand is united by a vision to improve the quality of lives of these children in each local community.

They plan to fulfill these aims by providing opportunities for social interaction between children with cerebral palsy and able-bodied students of the same age group. This will be done through a Buddy Scheme that involves individuals willing to participate in the program. They aim to include activities such as puzzles and story-reading that will encourage communication between the buddy pairs. In addition, the buddies' goal is to meet up once a week to reinforce friendships established.

According to Greek mythology, Pegasus is known as the winged horse that represents inspiration, hope and knowledge. Pegasus symbolises their goal to bring friendship and happiness to children in each local community with Cerebral Palsy.

If you already have a Buddy Scheme and are prepared to share your experiences and/or you are interested in this initiative in New Zealand and would like to learn more, please email pwf@outlook.co.nz or cherie.jia1@gmail.com

What is a Joelette?

A Joelette is similar to a palanquin or litter, a portable chair carried on long poles with one supporting wheel.

The Joelette creates the possibility for people with a motor disorder to explore nature, forests and the great outdoors. It gives opportunities for people with reduced mobility to plan their own path up hill and down dale without caring about the obstacles of nature.

 

Joëlettes can be used simply for walks with family and friends. But they can also be used for more adventurous hiking and even ½ marathon runs. Three Joelettes even hiked Mount Ventoux!

For further information please contact leoleysen@hotmail.com

Producer : http://www.hce.asso.fr/

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